Table 1.
Sample characteristics
Total | Patients with follow-up data | Patients without follow-up dataa | P-value | |
---|---|---|---|---|
N (%) Mean (SD) N = 96 |
N (%) Mean (SD) N = 58 |
N (%) Mean (SD) N = 38 |
||
Male | 81 (84.4) | 46 (79.3) | 35 (92.1) | 0.09 |
Age | 71.6 (10.9) | 70.9 (10.2) | 72.6 (11.9) | 0.44 |
Race | ||||
White | 84 (87.5) | 53 (91.4) | 31 (81.6) | 0.03 |
Black | 3 (3.1) | 3 (5.2) | 0 (0.0) | |
Hispanic | 7 (7.3) | 1 (1.7) | 6 (15.8) | |
Asian | 1 (1.0) | 0 (0.0) | 1 (2.6) | |
Other | 1 (1.0) | 1 (1.7) | 0 (0.0) | |
Marital status | ||||
Married | 62 (64.6) | 35 (60.3) | 27 (71.1) | 0.34 |
Separated | 2 (2.1) | 1 (1.7) | 1 (2.6) | |
Divorced | 18 (18.8) | 14 (21.1) | 4 (10.5) | |
Widowed | 9 (9.4) | 4 (6.9) | 5 (13.2) | |
Never married | 5 (5.2) | 4 (6.9) | 1 (2.6) | |
Highest degree | ||||
None/less than high school | 3 (3.1) | 2 (3.5) | 1 (2.6) | 0.78 |
High school or GED | 22 (22.9) | 11 (19.0) | 11 (29.0) | |
Associate’s degree | 11 (11.5) | 8 (13.8) | 3 (8.0) | |
Bachelor’s degree | 38 (39.6) | 23 (39.7) | 15 (39.5) | |
Graduate/professional degree | 22 (22.9) | 14 (24.1) | 8 (21.1) | |
Years of schooling | 15.7 (2.4) | 15.7 (2.5) | 15.5 (2.3) | 0.68 |
Employment | ||||
Working full time/part time | 18 (18.8) | 6 (10.3) | 12 (31.6) | 0.06 |
With a job and not working for other reasons | 1 (1.0) | 1 (1.7) | 0 (0.0) | |
Unemployed and looking for work | 1 (1.0) | 0 (0.0) | 1 (2.6) | |
Disabled and not working | 13 (13.5) | 9 (15.5) | 4 (10.5) | |
Retired and not working | 63 (65.6) | 42 (72.4) | 21 (55.3) | |
UPDRS ADLs scale | ||||
(Range: 0–48) 0 = best state | 14.5 (7.6) | 14.2 (7.8) | 15.1 (7.3) | 0.54 |
Recruited at VA | 54 (56.2) | 32 (55.2) | 22 (57.9) | 0.79 |
How Parkinson’s disease affects you on a day-to-day basis? | ||||
No difficulties | 10 (10.4) | 8 (13.8) | 2 (5.3) | 0.17 |
Mild difficulties | 34 (35.4) | 23 (39.7) | 11 (28.9) | |
Moderate difficulties | 38 (39.6) | 17 (29.3) | 21 (55.3) | |
High levels of difficulties | 12 (12.5) | 10 (17.2) | 2 (5.3) | |
Extreme difficulties | 2 (2.1) | 0 (0.0) | 2 (5.3) | |
On a scale of 1–10, where 10 is the best possible quality of life and 1 is the worst possible quality of life (as bad or worse than being dead) overall, how would you rate your quality of life? | ||||
1 | 1 (1.0) | 1 (1.7) | 0 (0.0) | 0.33 |
2 | 1 (1.0) | 0 (0.0) | 1 (2.6) | |
3 | 4 (4.2) | 1 (1.7) | 3 (7.9) | |
4 | 5 (5.2) | 3 (5.2) | 2 (5.3) | |
5 | 15 (15.6) | 11 (19.0) | 4 (10.5) | |
6 | 11 (11.5) | 5 (8.6) | 6 (15.8) | |
7 | 31 (32.3) | 18 (31.0) | 13 (34.2) | |
8 | 21 (21.9) | 13 (22.4) | 8 (21.1) | |
9 | 6 (6.3) | 5 (8.6) | 1 (2.6) | |
10 | 1 (1.0) | 1 (1.7) | 0 (0.0) |
aMean number of months between baseline and follow up survey is 17.9 (SD = 4.2; range = 11.1–24.0 months; IQR = 13.6–22.1 months). Two-sample t-test was used for age and years of schooling. Chi-square test was used for gender, race, marital status, highest degree, employment, and recruited at VA. Wilcoxon rank-sum test was used for all others