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Sample characteristics of survey respondents
| Age | |
| 30–49 | 32 |
| 50–59 | 117 |
| 60–69 | 300 |
| 70–79 | 281 |
| Over 80 | 52 |
| Duration | |
| Less than 2 years ago | 134 |
| 2–5 years ago | 313 |
| 6–10 years ago | 209 |
| 11–20 years ago | 98 |
| More than 20 years ago | 28 |
| Connection | |
| I have Parkinson’s | 678 |
| I am a carer/partner/family member or friend | 104 |
| I am a bereaved carer/partner/family member or friend | 8 |
